Chelsea's Hope

Associated Athletes: Denny Hamlin
Associated Sports:
  • Auto Racing
  • Motor Sports
Causes Served:
  • Children and Youth
  • Health
Age Groups Served: All
Mailing Address: P.o. Box 1984
City: Danville
State/Province: California
Zip/Postal Code: 94526
Country: United States
Website: Http://

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mission Statement
the Specific Purpose of This Corporation is to Aid and Assist the Lafora Researchers by Raising Funds for Research, Treatment and Cures for Those Affected by Lafora. in Addition, Our Goal is to Raise Awareness About Lafora and to Provide Connection and Assistance for Families in the Form of Education, Emotional and General Support.

chelsea's Hope Lafora Children Research Fund
Chelsea's Hope Began in the Fall of 2007 As a Means to Share Our Story About Our Daughter Chelsea and Her Diagnosis of Lafora. Feeling Helpless, Hopeless and Alone is Our Sorrow We Began to Realize We Could No Longer Continue to Live Under the Black Cloud of Despair That Was Lafora. We Connected with the World's Leading Experts in Lafora Research and Soon Thereafter, Through the Power of the Internet, Began to Find Other Lafora Families and Encouraged Them to Join Our Cause of Creating Awareness, Connection and Raising Money for Research.

September 2009, Chelsea's Hope Filed for and Became an Irs 501(c)3 Non-profit Organization.

who We Are
We Are Friends and Family of Chelsea, a Beautiful 19 Year Old Girl Who Has Been Stricken with a Malicious Disease Known As Lafora.

Lafora Strikes Kids in Early Adolescence and Takes Healthy, Functioning Children Down a Path of Horrible Seizures, Loss of Cognition, Dementia, And, Eventually, Death.

There Are No Words to Make the Description of Lafora Easier to Stomach. Imagine, One Day Getting a Call from School or Camp or a Neighbor, Saying That Your Daughter or Son Had a Seizure out of the Blue. Imagine Hoping That It Was a One Time, Unexplainable Incident Only to Realize That It Was Just the Beginning of a Hard to Diagnose Disease. Imagine the Journey of Taking Your Child to Endless Doctors, Praying for Someone to Name the Disease and Prescribe the Treatment Only to Be Told That the Disease Has No Treatment- Only a Progression of Symptoms and a Deterioration of Your Child’s Life.

Lafora is a Rare, Orphan Disease and Therefore Gets No Federal Funding to Speak Of. Researchers Are at a Pivotal Point in Their Exploration of Lafora. in Order to Find a Cure, We Are Trying to Aid the Researchers by Raising the Funds Necessary to Facilitate Their Research. Chelsea’s Future, and the Future of So Many Other Children, is Dependant on the Dollars You and Others Provide.

Our Wish is That As You Look Through Our Site, You Will Help Us Achieve Chelsea’s Hope: a Day when the Diagnosis of Lafora Actually Means a Treatment Plan That Will Allow for Dreams of Tomorrows That Are Endless and Smiles That Are Contagious.

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